Children's Cancer and Leukaemia Group
TREATMENT GUIDLINES

MOUTHCARE GUIDELINES

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THERAPY BASED LONG TERM FOLLOW UP
(2nd EDITION, APRIL 2005)

Practice Statement

The intention of this Practice Statement “Therapy Based Long Term Follow Up” (2nd Edition) is to inform and guide all clinicians responsible for the clinical follow up of long term survivors of treatment for childhood malignancy, including survivors of bone marrow transplantation (BMT). The Practice Statement updates and extends the information available in the 1st edition “Long Term Follow Up Therapy Based Guidelines” (1995, ed GDN Kissen, WHB Wallace), which was also produced by the UKCCSG Late Effects Group (LEG). The Practice Statement incorporates four new sections (Recipients of blood products, Neurological, Spine, Absent or dysfunctional spleen) and 3 new appendices (two that draw together the many aspects of follow-up required for Survivors of CNS tumoursand Survivors of BMT, and one that summarises recommendations for Immunisation after completion of treatment).

THERAPY BASED LONG TERM FOLLOW UP - Practice Statement
Updated 27 June 2006
  1. page 29, section 19 (Absent or dusfunctional spleen), Risk Factors box amended
  2. page 40, Appendix B (Survivors of allogeneic bone marrow transplantation), Immunology, Clinical evaluation, recommendation 2 amended.
 
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PDFTHERAPY BASED LONG TERM FOLLOW UP (2nd EDITION, APRIL 2005)
Practice Statement

Full Document (1.17mb)
 
Introduction (708kb)  
How to use this statement (48kb)  
Potential late adverse effects – all patients (43kb)  
Potential late adverse effects of chemotherapy (51kb)  
Potential late adverse effects of radiotherapy (50kb)  
Potential late adverse effects of surgery (49kb)  
1. Quality of life (50kb) Chris Eiser/Annie Griffiths
2. Secondary malignancy (53kb) Helen Jenkinson
3. Recipients of blood products (53kb) Gill Levitt
4. Neurological (50kb) Rod Skinner
5. Neuropsychological (52kb) Chris Eiser
6. Visual (50kb) Frank Saran
7. Auditory (51kb) Rod Skinner
8. Craniofacial / Dental (50kb) Gill Levitt
9. Hypothalamic-pituitary axis (59kb) Helena Davies
10. Thyroid (60kb) Helena Davies
11. Gonadal – female (53kb) Hamish Wallace
12. Gonadal – male (60kb) Hamish Wallace
13. Spine (49kb) Gill Levitt
14. Cardiac (54kb) Gill Levitt
15. Respiratory (54kb) Meriel Jenney
16. Breast tissue (54kb) Gill Levitt
17. Gastrointestinal (50kb) Denise Williams
18. Hepatic (52kb) Denise Williams
19. Absent or dysfunctional spleen (52kb) Helen Jenkinson
20. Renal (58kb) Rod Skinner
21. Lower urinary tract (50kb) Rod Skinner
22. Bone density (53kb) Helena Davies
23. Skin (50kb) Rod Skinner
24. Skin / bone / artery / soft tissue in radiotherapy field (49kb) Frank Saran
25. Major surgical procedure, including endoprosthesis (51kb) Rod Skinner
APPENDICES (667kb)
 
A. Survivors of central nervous system tumours (58kb) Adam Glaser
B. Survivors of bone marrow transplantation (110kb) Rod Skinner/Ali Leiper
C. Facts of puberty (58kb) Hamish Wallace
D. Facts of fertility (54kb)
Hamish Wallace
E. Immunisation after completion of treatment (53kb) Rod Skinner
F. Follow up protocol list (49kb)  
G. Treatment summary (49k)
 
H. Investigations (49kb)  
I. Index (52kb)