| Children's Cancer and Leukaemia Group | |||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
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| TREATMENT GUIDLINES
THERAPY BASED LONG TERM FOLLOW UP
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Practice StatementThe intention of this Practice Statement “Therapy Based Long Term Follow Up” (2nd Edition) is to inform and guide all clinicians responsible for the clinical follow up of long term survivors of treatment for childhood malignancy, including survivors of bone marrow transplantation (BMT). The Practice Statement updates and extends the information available in the 1st edition “Long Term Follow Up Therapy Based Guidelines” (1995, ed GDN Kissen, WHB Wallace), which was also produced by the UKCCSG Late Effects Group (LEG). The Practice Statement incorporates four new sections (Recipients of blood products, Neurological, Spine, Absent or dysfunctional spleen) and 3 new appendices (two that draw together the many aspects of follow-up required for Survivors of CNS tumoursand Survivors of BMT, and one that summarises recommendations for Immunisation after completion of treatment). |
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Updated 27 June 2006
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SECTIONS |
CONTRIBUTORS |
Practice Statement Full Document (1.17mb) |
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| Introduction (708kb) | |
| How to use this statement (48kb) | |
| Potential late adverse effects – all patients (43kb) | |
| Potential late adverse effects of chemotherapy (51kb) | |
| Potential late adverse effects of radiotherapy (50kb) | |
| Potential late adverse effects of surgery (49kb) | |
| 1. Quality of life (50kb) | Chris Eiser/Annie Griffiths |
| 2. Secondary malignancy (53kb) | Helen Jenkinson |
| 3. Recipients of blood products (53kb) | Gill Levitt |
| 4. Neurological (50kb) | Rod Skinner |
| 5. Neuropsychological (52kb) | Chris Eiser |
| 6. Visual (50kb) | Frank Saran |
| 7. Auditory (51kb) | Rod Skinner |
| 8. Craniofacial / Dental (50kb) | Gill Levitt |
| 9. Hypothalamic-pituitary axis (59kb) | Helena Davies |
| 10. Thyroid (60kb) | Helena Davies |
| 11. Gonadal – female (53kb) | Hamish Wallace |
| 12. Gonadal – male (60kb) | Hamish Wallace |
| 13. Spine (49kb) | Gill Levitt |
| 14. Cardiac (54kb) | Gill Levitt |
| 15. Respiratory (54kb) | Meriel Jenney |
| 16. Breast tissue (54kb) | Gill Levitt |
| 17. Gastrointestinal (50kb) | Denise Williams |
| 18. Hepatic (52kb) | Denise Williams |
| 19. Absent or dysfunctional spleen (52kb) | Helen Jenkinson |
| 20. Renal (58kb) | Rod Skinner |
| 21. Lower urinary tract (50kb) | Rod Skinner |
| 22. Bone density (53kb) | Helena Davies |
| 23. Skin (50kb) | Rod Skinner |
| 24. Skin / bone / artery / soft tissue in radiotherapy field (49kb) | Frank Saran |
| 25. Major surgical procedure, including endoprosthesis (51kb) | Rod Skinner |
| APPENDICES (667kb) |
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| A. Survivors of central nervous system tumours (58kb) | Adam Glaser |
| B. Survivors of bone marrow transplantation (110kb) | Rod Skinner/Ali Leiper |
| C. Facts of puberty (58kb) | Hamish Wallace |
| D. Facts of fertility (54kb) |
Hamish Wallace |
| E. Immunisation after completion of treatment (53kb) | Rod Skinner |
| F. Follow up protocol list (49kb) | |
| G. Treatment summary (49k) |
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| H. Investigations (49kb) | |
| I. Index (52kb) |
General Disclaimer | Seeking other medical opinions about individual cases | Glossary | Accessibility